Chronic recurring idiopathic angioedema--the toll it has taken on my life:
Random...
- I have a celebrity friend flying in from New York who invited me to a business meeting at the Cheesecake Factory--he just texted me to apologize for inviting me to the Cheesecake Factory
- I have eaten only tofu and corn for nearly six months--it's what I know to be safe
- I eat one meal a day--dinner
- I am always hungry
- The nausea is all day everyday and one of the worst feelings like ever
- The headaches started coming about two months ago--they are overbearing and I can't even sleep through them
- Everything is so heavy to me, my Blackberry feels like it has the weight of a laptop and my laptop feels as weighty as a 43" television
- I am always swollen--lips, legs, hands, feet, belly
- I wake up with huge lips and lots of swelling everyday
- I may have to use my walker on the same day that I am able to go bike riding
- I have a walker
- I am always sleepy
- I am always tired
- I am so tired of being and feeling sick everyday that I don't really want to talk about it anymore--I suffer in quiet and work toward achieving my goals
- My goal is to complete the documentary feature film, "Life Without A Fork," by March 2012 and find a way to survive IA
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