"Life Without A Fork," Documentary Feature Film 01

Tweet


Making history as I work to find cause and cure for idiopathic angioedema, I have been filming and editing for almost two years. This has been a journey for me, particularly because I am ill--suffering with the condition--and have, until recently, been pretty much a one woman show. I have been all consumed with the project, getting some really heavy hitting, A+ celebrities on board, reaching out to fellow sufferers worldwide, and working night and day to ensure that this is a qualitative project.


I have limited my friends to almost none and pretty much have no social life. My teenage daughter recently asked why I'm still taking my birth control pills and I told her it's because I don't want to get pregnant--she laughed at me and said I'd need to actually have sex for that to happen. My avoidance of a social life has lots to do with my maturing and deciding that I only want people of the highest caliber, people who truly bring value added, in my world. I also, as a result of getting so depressed from having to learn to cope and live with chronic, non-hereditary (there's lots of attention around the hereditary form but absolutely none for us non-hereditary sufferers), angioedema, have decided that people who want to bring lots of their own stressors and self-centeredness into my life have no place with me! I'm absolutely, completely done with all of that nonsense and this feels so very liberating.


Becoming disabled has also been liberating, albeit a very long and challenging journey. I'm having to deal with so many issues of hunger and even starvation, accepting isolation, and being under the influence of tons of drugs--primarily antihistamines. In addition, I live in southern California and that, in itself, can lead to isolation. But it, along with the life threatening condition of angioedema, has made me fearless! When it comes to living, I'm totally all about, "brang it!"


So I work on the documentary--tentative release date: March 2012! I often tell people, the life I save may be my own (although I mostly used to say that line to my few former boyfriends in my insistence upon using condoms--lol). Alas, on all accounts, I'm still here!!!